Hair… my hair is still falling out…I don’t understand why…I haven’t had chemo in over a month…ok well I just checked and it has been three weeks…so maybe this is how it should be…either way I don’t like it! and remember when I said the best thing about being bald was NO bed head…well now that it has grown back a bit, I have constant bed head…I didn’t see that coming…
SIX… it took six tries and a hour to get a vein yesterday before my scan…and FIVE veins on my left arm blew…that is a total of SIX blown veins in a week…the only explanation has to be that the anemia is doing something to my veins…cause this has never happened before…*This might sound weird but I think God prepared me for it…on Thursday I decided I was going to have a ‘Good Attitude Day’ Saturday…I was not going to be annoyed if I had to wait…I was going to be nice to and patient with everyone…and I was…I wasn’t bubbly by any means…but I did not have an attitude…it isn’t their fault I had to get this test on a week I work…it isn’t their fault if I have to wait a while…and they don’t deserve my frustration…things need to be done right, I’m not at a store, I’m in a hospital, people matter, and I am not always the first or the most important…I am thankful for the preparation…God knows me…knows how I work…and is teaching me…everyday…*I like nothing more than to be a human pincushion, and having a snake of bruises up my arm…they are not as bad as the …Read more
Got my first blown vein Tuesday… can we say ‘April gets her blood taken too much’? I know it is not an unusual thing to have happen but…it was weird…you get a big bubble of blood under your skin and then it is bruised for a while…isn’t it pretty?the doctors appointment was…interesting, I guess…Dr. M discussed with Dr. R (the hematologist/oncologist from IU) my blood test results…they decided that the higher numbers are probably due to the hemolytic anemia and not the lymphoma…Dr. M said that what is happening is not something typically associated with remission…that this anemia stuff isn’t related…so, from what I understand (which isn’t much) this may or may not have happened whether I had gotten cancer or not…he is going to keep an eye on my numbers (ie; blood work every other day) and most likely start me on the crazy high dose of steroids again early next week…LUCKY ME! side-effects heaven on my week off…He said that it would be a few weeks of keeping an eye on my blood counts to see if getting my spleen removed is what is required…IF they can do it laparoscopically I would be in the hospital for two …Read more
Blood work and appointments…I have been getting blood work twice a week to keep an eye on the anemia…apparently the results from Thursday were concerning…because today we got a call from the cancer center stating I had to start steroids (again) TODAY (they said it was important I start them today) at least this time it is not such a crazy high dose…they also said that the doctor wants me to get more blood work on Monday and then to see me for an appointment on Wednesday…I’m a little freaked out by this…I was not supposed to see the doctor again until after my PET scan on the 30th (to discuss the results)…what does he want to talk to me about? he never does anything in the appointments other than press on my stomach asking if it hurts…so we begin another time of waiting…waiting to see what the doctor has to say, what specifically his concerns are with the blood work…waiting to see what the next step will be…waiting for life to get back to some kind of rhythm…also, what sucks about this impromptu appointment is that I start my new hours next week…I will now be working 7pm to …Read more